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Fondazione GIMEMA Onlus
Fondazione GIMEMA Onlus

Fondazione Gruppo Italiano Malattie Ematologiche dell'Adulto Onlus (GIMEMA)

GIMEMA (Gruppo Italiano Malattie EMatologiche dell’Adulto) is a non-profit research organisation, with a long-standing history of successful research in patients with haematological diseases (www.gimema.it). It mainly consists of a Data Centre based in Rome (Italy) and an affiliated network of some 150 haematology centres throughout the country (including University and Community based-hospitals). This large research network of GIMEMA centres is a substantial strength of the GIMEMA organization when operating national and international projects. GIMEMA has been conducting pivotal clinical trials in various disease sites and its research findings have been published in high impact medical journals including Blood and the New England Journal of Medicine. Prof. Franco Mandelli is the President of GIMEMA and the scientific leadership is run by eight research Working Parties (WP), each of which is dedicated to implementing and managing studies in a specific haematological disease site. Each WP is chaired and co-chaired by well known international experts in their specific area of research.

Our team

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Dr. Fabio Efficace

Dr. Fabio Efficace is a health outcome researcher leading a number of international projects in the area of onco-haematology. He heads the Health Outcomes Research Unit (http://promotion.gimema.it) of the GIMEMA Data Center (Italy) and is also the Chairman of the GIMEMA Working Party of Quality of Life. He has a long-standing experience in designing and analysing quality of life and data from haematological clinical trials and observational studies.

He is a member of the Scientific Board of the GIMEMA and a former Board member of European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group and of the Board of Directors of the “International Society for Quality of Life Research” (ISOQOL).

His work has focused primarily on the development of methods for assessing quality of life in a cross-cultural context, and on the integration of quality of life assessments into clinical research and routine practice settings. He has been awarded several international prizes in the area of health outcomes research in oncology and has given lectures in several top academic institutions and scientific societies in the USA and Europe including the Memorial Sloan-Kettering Cancer Center (MSKCC) in New York, University of Pittsburgh, State University of New York, as well as European Hematology Association (EHA) and the American Society of Hematology (ASH).

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Dr. Francesco Cottone

Dr. Francesco Cottone is a senior statistician, with expertise in theory and application of advanced statistical methods for the analysis of quality of life and clinical data. He also is the statistical advisor of "Health and Quality of Life Outcomes" journal.

He has a number of publications in leading journals and has presented at major International scientific meetings.

He is responsible for the methodological robustness in design and analysis of quality of life projects of GIMEMA Health Outcomes Research Unit.