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Myelodysplastic syndrome
Myelodysplastic syndrome

Welcome

Welcome to MDS Europe - the online home of the MDS-RIGHT project and the future hub for all European MDS (myelodysplastic syndromes) information and guidance.

On our pages you will find detailed information about MDS-RIGHT including the project's work packages, deliverables and the extensive team of project partners.

 

Multi-stakeholder meeting 'European Perspectives on MDS Patient Management'

  • Multi-stakeholder meeting
  • 3 May 2017, 16.00-18.00 hrs CET
  • Auditorium 3, Palacio de Congresos de Valencia
  • Avda. Cortes Valencianas, nº 60, Valencia, Spain

All stakeholders interested in advancing the cause of MDS research, diagnosis, treatment and care are invited to attend the first MDS-RIGHT multi-stakeholder meeting: European Perspectives on MDS Patient Management on 3 May 2017 in Valencia, Spain. This special meeting will bring together medical researchers, doctors, nurses and allied health professionals caring for MDS patients, patient advocates, healthcare regulators and health technology assessment specialists, payers, insurers and representatives from research funding organisations and the pharmaceutical industry.

Listen to a distinguished group of panelists and speakers and participate in the discussions about (viable solutions to) the many challenges MDS stakeholders are faced with across Europe, including, for example, MDS treatment access, reimbursement, testing, clinical practice recommendations, Quality of Life, ageism, and patient information, to name but a few. In addition, you will hear about the progress of the MDS-RIGHT research project and get an exclusive first-hand demonstration of a new interactive online tool supporting MDS patient management in real time.

Join us for this unique opportunity to obtain new insights and to exchange views directly with other MDS stakeholder groups!

Register here.

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European perspectives on MDS patient management

Register for our multi-stakeholder meeting in Valencia now

Register here

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European perspectives on MDS patient management - Program and invitation

Download the meeting program (PDF format)

Invitation and program

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MDS publications

Our curated collection of MDS-related publications is now available via our resources section

Explore publications

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About MDS page now live

What is MDS? What are the symptoms? How is it treated? Find out more on our About MDS page

Visit our About MDS page